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AGMT_CLL-Reg

AGMT Austrian CLL (chronic lymphocytic leukemia) Registry

Synopsis

Short title: AGMT_CLL-Reg

Title: AGMT Austrian CLL (chronic lymphocytic leukemia) Registry

Status: open

Start: März 2022

Coordinating Investigator: Univ. Prof. Dr. Richard Greil

NIS Number: NIS024234

Number of patients: 500 (planned)

Sponsor: AGMT gemeinnützige GmbH

Design

This registry is designed as multicenter observational cohort of patients with CLL. Patient medical, testing and treatment information will be obtained through extraction of data from existing patient medical charts. Longitudinal follow-up data, including survival and tumor progression, will also be extracted from patient medical charts. This patient follow-up data will be obtained until patient death or loss to follow-up.

Only routine data, which has already been recorded in the patient’s medical chart, is transferred to the electronic Case Report Forms.

The CLL registry will be accompanied by an optional biobanking program.

Objectives:

The goal of this registry is to build a disease-specific registry aimed at assessing the therapeutic landscape of patients with CLL in Austria. It will be set up to collect real-world experience in the management of patients with this disease. This registry will collect data at various sites in Austria. The aim is to gain valuable insights on both efficacy and toxicity, as well as the sequence of use of various treatments in a routine clinical setting.

The broad range of data collected within the scope of the AGMT CLL registry provides the possibility to identify and address further objectives.

Inclusion/Exclusion Criteria

Inclusion Criteria:

Physicians will select appropriate patients for enrollment. Appropriate patients are expected to:

  • Age >= 18 years
  • Diagnosis of CLL
  • Be willing to provide informed consent

Due to the non-interventional design of this program there are no specific in- or exclusion criteria.

Register
  • Register
    • AIHA Register
    • aMYELOIDr
    • ARIADNE NIS
    • CLL-Register
    • COVID-19 Register
    • LungCA Register
    • MBC Register
    • NGS Register
    • PTCL Register
Arbeitsgemeinschaft medikamentöse Tumortherapie gemeinnützige GmbH
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Zweigstelle & Zustelladresse: Wolfsgartenweg 31, 5020 Salzburg
Firmenbuchnummer: FN 289548 g
UID-Nummer: ATU63467108
+43 662 640 44 12
+ 43 664 142 25 04
+43 662 640 44 14
office@agmt.at
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